What is Tweet4Cams/Contact
Cams playing baseball over the summer!
Tweet4Cams is a way that I can “speak” for my brother Cameron. Since he cannot talk, I want to use social media site Twitter, as well as this blog, to tell his story, learn more about Infantile Neuroaxonal Dystrophy (INAD), reach out to other families, as well as educate people about this rare condition. I see how much he goes through and how he still manages to wake up every morning with a smile on his face – how can I not want to tell his story!
Cameron has been, and continues to be, such an inspiration in my life, and truly is my hero and role model (I never thought my role model would end up actually being half my age!). Tweet4Cams is my way of saying thank you to him, as well as doing what I believe he would want me to do.
Everyday Cameron is a huge inspiration for me, and I have learned so much from him. I really could not ask for a better brother!
E-mail: Tweet4Cams@gmail.com
Official Tweet4Cams Twitter page! – Follow us!
Become a fan on Facebook! http://www.facebook.com/tweet4cams
Wow Jennifer. I can tell you REALLY love your brother! How fantastic that you are doing this for him! I’m very honored to be part of your lives already!
Hi Jennifer. Cheri shared this information with me. What a great website and your love for your brother is inspiring. He is adorable! You are right, these kids are heros…I feel the same way about my son, Jared, age 8 with INAD. You can read more about our story on our website…www.caringbridge.org/visit/jaredose
Feel free to ask any questions. I am very open and want to help you in any way. It’s a tough road that we are on, and it’s good to be there for each other to support one another.
How did Cameron get his diagnosis?
Take care and I look forward to hearing more about Cameron!
[...] Cameron, has Infantile Neuroaxonal Dystrophy. In his honor, she has brought together a Team called Team Cams, for Make-A-Wish Walk for Wishes on May [...]
WOW Jenn…I feel like a TOTAL DUNCE because I have been following you on Twitter for a long time, and I actually saw a post that @Jenn1423 did about Cameron on JustBelieve, but I totally missed the detail that he’s your brother!
Now it all kind of makes sense. I’m really touched by your drive and determination to tell your brother’s story and to reach out to others and help them, as well.
Much Love! <3